Genetic Counseling Practice: Advanced Concepts and Skills

Introduction / Bonnie S. LeRoy, Patricia Mccarthy Veach, and Nancy P. Callanan -- Complicated shadows : the limitations of autonomy in genetic counseling / Robert G. Resta -- Actively engaging with patients in decision-making / Andrea Shugar and Cheryl Shuman -- Risk assessment and communication : a complex process / Shannan Delany Dixon, MaryAnn W. Campion, and Claire N. Singletary -- A genetic counselor's guide to understanding grief / Nadia Ali and Cecelia Bellcross -- Patient anger : insights and strategies / Lynn Schema -- Resistance and adherence : understanding the patient's perspective / Krista Redlinger-Grosse -- Countertransference : making the unconscious conscious / Krista Redlinger-Grosse -- Supporting family communication about genetic conditions / Marion Mcallister, Rhona Macleod, and Alison Metcalfe -- Developmentally-based approaches for counseling children and adolescents / Stephanie Austin and Kelly Schoch -- Cultural competency and genetic counseling : key concepts / Nancy Steinberg Warren -- Cultural competency : application to genetic counseling / Nancy Steinberg Warren -- Education in genetic counseling : the impacts of genetic literacy and adult learning / Andrea L. Durst and Rachel Mills -- Adapting genetic counseling practice to different models of service delivery / Angela Trepanier and Dawn C. Allain -- "Oh the places you'll go!" The genetic counselor professional development journey / Catherine A. Reiser -- Development of the genetic counseling profession : a professionalization process / Bonnie Jeanne Baty

Cover -- Title Page -- Copyright Page -- Contents -- Preface -- Acknowledgments -- About the Authors -- Chapter 1 Introduction -- Development of the 2nd Edition -- Reciprocal-Engagement Model -- Chapter Descriptions -- Considerations -- In Closing -- References -- Chapter 2 Complicated Shadows: The Limitations of Autonomy in Genetic Counseling Practice -- Definition and Focus -- Seven Limitations of Autonomy -- Limitation Number 1 - The Right to Autonomous Decision Making is Not Universally Available to All People Due to Economic and Social Realities -- Limitation Number 2 - In Practice, Autonomy is Not a Right but a Privilege that can be Denied Based on Socioeconomic Status -- Limitation Number 3 - Autonomy is a Culturally Limited Concept -- Limitation Number 4 - Even Among Westernized Genetic Counseling Patient Populations, Individual Autonomy is Not Universally Desired -- Limitation Number 5 - Autonomy can Serve to Justify a Poor Counseling Technique Called "Nondirectiveness" -- Limitation Number 6 - If Genetic Diseases Run in Families, and Families are Our Patients, Why Shouldn't the Family Have Autonomy? -- Summary -- Learning Activities -- References -- Chapter 3 Actively Engaging with Patients in Decision-Making -- A Brief History of the Medical Encounter: From Paternalism to Shared Decision-Making -- Psychological Aspects of Decision-Making -- Patients' Use of Heuristics to Make Decisions -- Patients Recall Information Differently: Fuzzy Trace Theory -- Informed Decision-Making -- Decisions in Genetic Counseling - What Makes Them Unique? -- Behavioral Economics and Decision-Making -- Binning and Decision-Making -- Barriers to Decision-Making, Decisional Conflict, and Discord -- Applying Shared Decision-Making in the Genetic Counseling Encounter -- Approaches and Tools for Facilitating Decision-Making -- Summary -- Learning Activities.