Stem cell researchers' trust, ambivalence and reflexivity: opportunities for improved science–public relations?
In: Science and public policy: journal of the Science Policy Foundation, Band 38, Heft 7, S. 541-554
ISSN: 1471-5430
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In: Science and public policy: journal of the Science Policy Foundation, Band 38, Heft 7, S. 541-554
ISSN: 1471-5430
In: The sociological review, Band 58, Heft 1_suppl, S. 32-50
ISSN: 1467-954X
In: Journal of sociology: the journal of the Australian Sociological Association, Band 51, Heft 1, S. 97-115
ISSN: 1741-2978
Approaches to public engagement in biosciences and biotechnologies have been informed by work done by sociologists and science and technology studies (STS) scholars, in particular their critiques of traditional elitist and technocratic approaches to science policy. In this article, we analyse one attempt at institutionalising public engagement in Australia, and focus on points of tension between different actors. We explore the roles of social scientists in policy and in public engagement, and the potential for opening up discussions and decision-making about the biosciences and biotechnologies. We reflect on the difficulties for social scientists in maintaining a critical yet constructive voice and draw attention to care as a possible ethico-political commitment and practice that may create opportunities and spaces for improving public engagement and policy making.
Intro -- Acknowledgements -- Contents -- 1: IVF and Assisted Reproduction: Global Visions, Local Stories -- Chapter Outline and Historical Overview -- Language, Narrative and Media -- The Power of Analogy -- Rights and Needs -- Words Unsaid -- Assisted Reproduction: An Intimate Industry -- 2: Towards the Two 1978 Births -- Disciplines and Imaginaries -- Clinical and Scientific Disciplines -- The IVF Imaginary -- Bringing Together Ideas and Materials -- Materials, Tools and Techniques -- Tortuous Paths to IVF -- Global Contexts, National Priorities -- 'Making' IVF 'Right': Technical Promises, Ethical Issues and Women Pioneers117 -- 'Assembling' for 'Success' in the UK and India -- Conclusions -- 3: The Foundations of Global Assisted Reproduction -- Fertility Drugs and New Patient Cohorts -- The First Bourn Hall Meeting -- Media Responses -- Institutionalising Assisted Reproduction: Associations, Meetings, Journals -- International Training -- Money -- Commercial Ties: Drugs and Devices -- News Media and Public Relations -- Nations, Natalism and Assisted Reproduction -- Population and Procreation -- Eugenic Thinking and Assisted Reproduction -- Conclusions -- 4: Regulation and Risk -- Early Regulatory Moves -- Regulatory Activism: The Role of Religion -- Religion and Compliance -- Religion, AR and 'Left' Versus 'Right' -- Regulatory Activism: Peer Regulation -- Regulatory Activism: Feminist Interventions -- Case Study: Italy's Law 40/2004 -- Soft Regulation, Risk Management and Compliance Strategies -- Clinical Risk: The Example of Multiple Births -- Multiple Births and Patients' Perspectives -- Donor Anonymity -- Success Rates -- Conclusions -- 5: Oocytes, Surrogacy and Cross-Border Reproduction -- Donation and Selling of Oocytes -- Egg Donation -- Egg Sharing -- Egg Selling -- Oocyte Provider Profiling.