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Prevention of child maltreatment: developmental and ecological perspectives
In: Wiley series on personality processes
Voting and the Scottish referendum: perspectives of people with intellectual disabilities and their family and paid carers
In: Disability & society, Band 31, Heft 7, S. 914-928
ISSN: 1360-0508
Examining Dementia Caregivers' Experiences
In: The International journal of aging and society, Band 7, Heft 2, S. 59-72
ISSN: 2160-1917
Carer Knowledge and Experiences With Menopause in Women With Intellectual Disabilities
In: Journal of policy and practice in intellectual disabilities: official journal of the International Association for the Scientific Study of Intellectual Disabilities, Band 7, Heft 1, S. 42-48
ISSN: 1741-1130
AbstractOverall life expectancy for women with intellectual disabilities (ID) is now significantly extended, and many will live long enough to experience menopause. Little is known about how carers support women with ID through this important stage in their lives. This study investigated carer knowledge of how menopause affects women with ID under their care and how they may help them to cope with it. One‐to‐one interviews were undertaken with 69 carers (7 male/62 female) from a range of backgrounds, all with current responsibility for the care of one or more pre‐, peri‐, and/or postmenopausal women with ID. Carers reported difficulty in disentangling the psychological and physical consequences of the menopause from behaviors and symptoms arising from other causes. There was general recognition of the transitional importance of menopause and a widespread acknowledgment of the resilience that many women with ID show in coping with it. However, carers emphasized the need for health resources to be better tailored to the women's needs and for more relevant health education training for staff. The authors conclude that additional and new demands are placed on service provision as women with ID live longer. An increased awareness of health issues relating to menopause is needed, as are more appropriate and readily available relevant health education materials for women with ID in middle age.