Family resilience and chronic illness: interdisciplinary and translational perspectives
In: Emerging Issues in Family and Individual Resilience 1
In: Emerging Issues in Family and Individual Resilience Ser.
Intro -- Dedication -- Preface -- Acknowledgements -- Contents -- About the Editors -- Contributors -- Chapter 1: Using a Life-World Approach to Understand Family Resilience -- 1.1 How the Study of Life-World Contributes to Resilience Theory -- 1.2 Interpreting Family Responses to the Challenges of Chronic Illness -- 1.2.1 Resilience in Family Caring Practices with Schizophrenia -- 1.2.2 Family Resilience in Dementia -- 1.2.3 Family Resilience in Sudden Death -- 1.3 Discussion and Implications -- Discussion Questions -- References -- Chapter 2: The Experience of Preterm Birth: Helping Families Survive and Thrive -- 2.1 Medical Issues Related to Premature Birth -- 2.2 The NICU Experience for the Family -- 2.2.1 The Infant NICU Experience -- 2.2.2 The Parent NICU Experience -- 2.2.3 The Infant and Parent Relationship in the NICU -- 2.3 Building Resilience -- 2.3.1 Building Resilience While in the NICU -- 2.3.2 Building Resilience in Transition -- 2.3.3 Transition to Community Providers -- 2.3.4 Home Visits -- 2.3.5 Medical Home -- 2.4 Child Maltreatment and Caregiving Burden for NICU Graduates -- 2.5 Developmental Outcomes -- 2.6 Chronic Conditions -- 2.7 Conclusions -- Discussion Questions -- References -- Chapter 3: Enhancing Coping and Resilience Among Families of Individuals with Sickle Cell Disease -- 3.1 Medical Complications and Treatments -- 3.1.1 Medical Management of SCD -- 3.1.2 Prognosis Among Individuals with SCD -- 3.2 Neurocognitive Effects -- 3.2.1 Academic Risk Factors -- 3.3 Resilience and Coping Among Individuals and Families Living with SCD -- 3.3.1 Family Coping with SCD -- 3.3.2 Coping in Children -- 3.3.3 Caregiver Coping -- 3.3.4 Coping in Adults with SCD -- 3.4 Summary and Conclusions -- 3.5 Implications for Understanding Family Resilience -- 3.5.1 Implications for Practice and/or Policy -- 3.6 Future Directions.