Suchergebnisse

SummaryThe incidence of family breakdown and stress has been examined in an unselected group of 92 South Wales families, each containing a patient suffering from Huntington's chorea, and related to the onset and duration of the disease, age of the patient, and behavioural symptoms shown. The frequency of actual and attempted suicide is analysed and the effects of the disorder on the primary care agent for the patient discussed. Some of the effects on children and the needs of the families for support and practical help are outlined. It is concluded that family support is an essential factor in any programme aimed at the long-term alleviation and prevention of Huntington's chorea.

SummaryAn unselected group of 92 patients, suffering from Huntington's chorea in South Wales, has been studied in relation to the effects of the disease on employment, need for hospitalization, and the financial burden to the state. Results are compared with data from a matched control group. The difficulties of costing are discussed: a total figure of £21,500 is estimated to be the minimum unit cost per patient in 1980.