A Study of Reliance Agreement Templates Used by U.S. Research Institutions
In: IRB: ethics & human research, Band 40, Heft 3, S. 6-10
ISSN: 2326-2222
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In: IRB: ethics & human research, Band 40, Heft 3, S. 6-10
ISSN: 2326-2222
In: Journal of applied research in intellectual disabilities: JARID, Band 27, Heft 6, S. 521-530
ISSN: 1468-3148
BackgroundThe purpose of this study was to examine parent report of conversations about difference and disability in families of adolescents with intellectual disability.Materials and MethodsParticipants included 50 parents (44 mothers, four fathers, and two other caregivers) and their adolescents with intellectual disability (M age = 15.9). Parents provided written responses to open‐ended questions regarding conversations with their adolescent. Adolescents completed measures of self‐concept and self‐determination.ResultsThe majority (66%) of parents reported talking to their adolescent about difference and/or disability. Consistent with previous research, some of these conversations were in response to social exclusion (e.g. child was bullied). Parents who knew the aetiology of their child's disability were significantly more likely to talk with their child about his or her disabling condition.ConclusionsParents' narratives illustrate their struggle to explain disability to their adolescent. Professionals are challenged to consider how to promote proactive conversations between parents and adolescents.
The National Institutes of Health (NIH) recognizes that, despite HIV scientific advances, stigma and discrimination continue to be critical barriers to the uptake of evidence-based HIV interventions. Achieving the Ending the HIV Epidemic: A Plan for America (EHE) goals will require eliminating HIV-related stigma. NIH has a significant history of supporting HIV stigma research across its Institutes, Centers, and Offices (ICOs) as a research priority. This article provides an overview of NIH HIV stigma research efforts. Each ICO articulates how their mission shapes their interest in HIV stigma research and provides a summary of ICO-relevant scientific findings. Research gaps and/or future opportunities are identified throughout, with key research themes and approaches noted. Taken together, the collective actions on the part of the NIH, in tandem with a whole of government and whole of society approach, will contribute to achieving EHE's milestones.
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