Suchergebnisse

Cover -- Halt Title -- Title Page -- Copyright Page -- Contents -- Introduction to the AldineTransaction Edition -- Listof Contributors -- Preface -- Acknowledgement -- I. Evolution of Genetic Counseling -- 1 Genetic Counseling: Values That Have Mattered -- 2 The Training of Genetic Counselors: Origins of a Psychosocial Model -- 3 The Workplace Ideology of Genetic Counselors -- 4 When Theory Meets Practice: Challenges to the Field of Genetic Counseling -- II. Social and Policy Issues in Genetic Counseling -- 5 Risk and the Ethics of Genetic Choice -- 6 Discrimination Issues and Genetic Screening -- 7 Role of Public Policy in Genetic Screening and Counseling -- 8 Parables -- III. Future Directions and Ethical Challenges in Genetic Counseling -- 9 The Impact of the Human Genome Project for Genetic Counseling Services -- 10 The Evolution of Nondirectiveness in Genetic Counseling and Implications of the Human Genome Project -- 11 Objectivity, Value Neutrality, and Nondirectiveness in Genetic Counseling -- 12 Ethical Obligations of Genetic Counselors -- 13 Neutrality Is No tMorality: The Ethics of Genetic Counseling -- IV. Appendix -- Appendix A Nationa lSociety of Genetic Counselors Code of Ethics -- References -- Index

Cover -- Title Page -- Copyright Page -- Contents -- Preface -- Acknowledgments -- About the Authors -- Chapter 1 Introduction -- Development of the 2nd Edition -- Reciprocal-Engagement Model -- Chapter Descriptions -- Considerations -- In Closing -- References -- Chapter 2 Complicated Shadows: The Limitations of Autonomy in Genetic Counseling Practice -- Definition and Focus -- Seven Limitations of Autonomy -- Limitation Number 1 - The Right to Autonomous Decision Making is Not Universally Available to All People Due to Economic and Social Realities -- Limitation Number 2 - In Practice, Autonomy is Not a Right but a Privilege that can be Denied Based on Socioeconomic Status -- Limitation Number 3 - Autonomy is a Culturally Limited Concept -- Limitation Number 4 - Even Among Westernized Genetic Counseling Patient Populations, Individual Autonomy is Not Universally Desired -- Limitation Number 5 - Autonomy can Serve to Justify a Poor Counseling Technique Called "Nondirectiveness" -- Limitation Number 6 - If Genetic Diseases Run in Families, and Families are Our Patients, Why Shouldn't the Family Have Autonomy? -- Summary -- Learning Activities -- References -- Chapter 3 Actively Engaging with Patients in Decision-Making -- A Brief History of the Medical Encounter: From Paternalism to Shared Decision-Making -- Psychological Aspects of Decision-Making -- Patients' Use of Heuristics to Make Decisions -- Patients Recall Information Differently: Fuzzy Trace Theory -- Informed Decision-Making -- Decisions in Genetic Counseling - What Makes Them Unique? -- Behavioral Economics and Decision-Making -- Binning and Decision-Making -- Barriers to Decision-Making, Decisional Conflict, and Discord -- Applying Shared Decision-Making in the Genetic Counseling Encounter -- Approaches and Tools for Facilitating Decision-Making -- Summary -- Learning Activities.