Suchergebnisse

Cover -- Title Page -- Copyright Page -- Contents -- About the editors -- About the contributors -- Acknowledgements -- Chapter 1 Making surprising things happen: building primary care in urban disadvantaged communities -- Chapter 2 Riverside Community Health Project: workers' stories -- Chapter 3 Foxhill - an out of the ordinary story of inner city teamwork -- Chapter 4 Community oriented approaches to health: reconciling individual and community needs -- Chapter 5 Sustaining a healthy workforce -- Chapter 6 Community development and primary healthcare -- Chapter 7 Community Action on Health: marrying community development and primary care -- Chapter 8 Sure Start, making a difference? A parent's perspective -- Chapter 9 The Flower 125 Health Club -- Chapter 10 Smoking cessation: a community education training programme -- Chapter 11 Second chancers: community cardiac rehabilitation in the inner city -- Chapter 12 A whole system approach to change in mental health services: throwing stones or throwing birds? -- Chapter 13 Responding to the needs of older people: a multidisciplinary community resource team approach -- Chapter 14 Happy Hearts -- Chapter 15 Facilitating work, social support and health in an ethnically diverse community -- Chapter 16 A primary care clinic for drug dependence: addressing the heroin problem in Sheffield -- Chapter 17 Engaging with the messy world of primary care and urban communities: future directions -- Index

Introduction: To coordinate care effectively for rare conditions, we need to understand what coordinated care means. This review aimed to define coordinated care and identify components of coordinated care within the context of rare diseases; by drawing on evidence from chronic conditions.Methods: A systematic scoping review. We included reviews that reported or defined and outlined components of coordinated care for chronic or rare conditions. Thematic analysis was used to develop a definition and identify components or care coordination. Stakeholder consultations (three focus groups with patients, carers and healthcare professionals with experience of rare conditions) were held to further explore the relevance of review findings for rare conditions.Results: We included 154 reviews (n = 139 specific to common chronic conditions, n = 3 specific to rare conditions, n = 12 both common/rare conditions). A definition of coordination was developed. Components were identified and categorised by those that: may need to be coordinated, inform how to coordinate care, have multiple roles, or that contextualise coordination.Conclusions: Coordinated care is multi-faceted and has both generic and context-specific components. Findings outline many ways in which care may be coordinated for both rare and common chronic conditions. Findings can help to develop and eventually test different ways of coordinating care for people with rare and common chronic conditions.