Suchergebnisse

Acknowledgments -- Contents -- Notes on Contributors -- List of Figures -- List of Tables -- Introduction: Empire of Religions: Exploring Belief and Practice in Imperial Japan and Colonial Korea -- Religions in Empires -- Contributors -- Conclusion -- Notes -- Chapter 1: Finding Religion in Japan's Empire -- The Political Invention of Religion -- Finding Religion in Empire -- Notes -- Chapter 2: State Shinto Policy in Colonial Korea -- Introduction -- The Construction of a State Shinto System in Colonial Korea: On the Characteristics of Law -- Changes During Cultural Rule: The Emergence of an Independent Shrine Administration -- The Truth About the State Shinto System in Korea -- Education and Shrines: "Separation of Church and State" and Chōsen jingū, Christianity, and the Mobilization of School Children -- Conclusion -- Notes -- Chapter 3: Korean Buddhist Historiography and the Legacies of Japanese Colonialism (1910-1945) -- Introduction: Problematizing Buddhism's Position in Japan and Korea Prior to Colonialism -- Religion and Politics: The Paradox of Japanese Colonialism for Korean Buddhism -- The Stigmatization of Collaboration and the Logic of State-Protection Buddhism -- Conflating Religious and Political Commitments -- Historical Continuities in Policies and Prescriptions -- Conclusion: Persistent Dichotomies and the Reproduction of Colonial Assumptions -- Notes -- Chapter 4: The Adventures of a Japanese Monk in Colonial Korea: Sōma Shōei's Zen Training with Korean Masters -- Two Separate Communities in Colonial Korea -- Sōma and the Association of Korean Buddhism (Chōsen Bukkyōdan) -- Sōma's Adventures in Colonial Korea -- Search for Masters -- Sōma's Views on Japanese and Korean Buddhism -- "Go Back to the Mountains": The Impact of Sōma's Writings -- Conclusion -- Notes

This book provides in-depth analyses of a wide range of topics surrounding ethical issues in community and patient stakeholder-engaged health research, and highlights where consensus exists, is emerging, or remains elusive. Topics in this book cover the history of stakeholder engagement in health research; how codes of ethics and regulations have (or have not) addressed stakeholder engagement; how to promote equitable collaboration; the ethical perspectives of different stakeholders; and the unique challenges posed by stakeholder- engaged research to the protection of human research participants and the research ethics review process. The book includes discussion of unique issues that arise in stakeholder engagement relevant to different populations, settings, and research designs. This book is relevant for anyone with a role or interest in stakeholder-engaged research, including patient and community research partners; academic researchers; research ethics scholars and educators; and funders

Chapter 1. Introduction (Emily E. Anderson) -- Part 1. History, Codes of Ethics, Regulations -- Chapter 2. Theoretical roots of stakeholder-engaged research and reflections on CBPR and PCOR as a response to past research abuses (Meredith Minkler) -- Chapter 3. A philosophical justification for stakeholder engagement and key principles/a conceptual model for ethical stakeholder-engaged research (Emily E. Anderson) -- Chapter 4. Epistemology and stakeholder engagement/impact of diversity on ethical standards and practices (Kevin C. Elliott) -- Chapter 5. The limitations of the Belmont principles for stakeholder-engaged research (Elisa Hurley) -- Chapter 6. Canada's approach to regulating research with indigenous peoples (Kim Anderson) -- Chapter 7. The Council for International Organizations of Medical Sciences (CIOMS) Ethical Guidelines and Stakeholder Engagement (Alex John London) -- Chapter 8. History and philosophy of patient engagement in clinical research (Robert M. Califf) -- Part 2. Promoting Equitable Collaboration -- Chapter 9. Who represents the community? Diversity and inclusion (Ann-Gel Palermo) -- Chapter 10. Engagement for equity and sustainability; developing an equitable partnership; power-sharing, accountability, communication, conflict resolution, and trust (Giselle Corbie-Smith) -- Chapter 11 -- Capacity building and benefits to communities; Credit and compensation for community and patient stakeholders (Elizabeth Ripley) -- Chapter 12. Engaging communities in agenda setting: deciding what questions get asked and how (Alice Ammerman) -- Chapter 13. Conflicts of interest in research that engages stakeholders [individual and organizational] (Susannah Rose) -- Part 3. Stakeholder Voices -- Chapter 14. "Crossing over" or "between two worlds" – The story of a someone whose engagement in research motivated them to get formal training in research or research ethics (Gigi McMillan) -- Chapter 15. A community IRB member/member of a community-based ethics review board (Bronx Community Research Review Board) -- Chapter 16. A stakeholder who has served as a PI (Sharon Terry) -- Chapter 17. A stakeholder who has served as a community advisory board member (Sandra Crouse Quinn) -- Chapter 18. The challenges of working in your own community -- Chapter 19. A patient advocate's experience engaging in research -- Part 4. Human Research Protections and Research Ethics Review -- Chapter 20. Stakeholder engaged research and (the limits of) IRB review (Jennifer Cross) -- Chapter 21. Community-level risks and benefits (Lainie Ross) -- chapter 22. The principle of respect for community - a new principle (Nancy Shore) -- Chapter 23. Challenges in the field and in interactions with research participants; challenges to voluntary informed consent, privacy, and confidentiality; Moral distress among lay stakeholders (Maghbooba Mosavel) -- Chapter 24. The notion of community consent (Charles Weijer) -- Chapter 25. Community-based research review processes (Hal Strelnick) -- Chapter 26. Data ownership and deciding what gets published (Melody Goodman) -- Part 5. Case Studies: Ethics of Stakeholder-Engaged Research Across Settings -- Chapter 27. Research in emergency settings: public notification and consultation (Ryan Spellecy) -- Chapter 28. Engaging stakeholders in genomics research and the governance of biobanks (Michelle McGowan) -- Chapter 29. Engaging online patient communities in research (Elizabeth Buchanan) -- Chapter 30. Engaging patient advocates in research (Deborah Collyar) -- Chapter 31. Engaging rare disease communities (Laura P. Forsythe) -- Chapter 32. Engaging stakeholders in basic science research (Rhonda Kost) -- Chapter 33. Engaging indigenous communities/ American Indian communities in Research (Bonnie Duran) -- Chapter 34. North Americans engaging internationally (Amy Corneli) -- Chapter 35. Engaging stakeholders in environmental health research (Doug Brugge) -- Chapter 36. Engaging stakeholders in research on stigmatized health conditions (e.g., mental health, addiction, HIV) (Dennis Watson) -- Chapter 37. Engaging youth in research (Celia Fisher).

This article considers political discourse and the role it played in the 2016 US presidential election while paying particular attention to its construction of narrative. Foucault's understanding of discourse and power frames the argument that Donald Trump successfully abandoned political narratives. Instead, he often used idiosyncratic language, instances in which the surface of a statement outshines its content. These normally appear in Trump's tweets and culminate in his invective against the 'fake news' media. In order to respond to Trump, his interlocutors must posit a premise and then refute it; in even granting that there is a premise, one must take Trump on his own terms. Trump thus disrupts the direction of traditional discursive power.

When community partners have direct interaction with human research participants, it is important to consider potential threats to participant protections and research integrity. Few studies have directly compared the views of academic and community partners. This pilot focus group study explores the views of academic partners (APs) and community partners (CPs) regarding challenges to the protection of research participants and research integrity in community-engaged research (CEnR). Data are analyzed to understand how APs and CPs define and think about ethical problems and how meaning and analysis may differ between the two groups. Findings have implications for the development of research ethics training materials for academic-community research partnerships and IRBs; Revised best practices for CEnR; Revised and future research on ethical issues in CEnR.