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Cover -- Half Title -- Title Page -- Copyright Page -- Dedication -- Table of Contents -- List of illustrations -- List of contributors -- Introduction -- Introduction: Contextualising disability and sexuality studies -- Part I Theoretical frames and intersections -- Chapter 1 Theorising disabled people's sexual, intimate, and erotic lives: Current theories for disability and sexuality -- Chapter 2 Theoretical developments: Queer theory meets crip theory -- Chapter 3 Thinking differently with Deleuze about the sexual capacities of bodies and the case of infertility amongst men with Down syndrome -- Chapter 4 A critical rethinking of sexuality and dementia: A prolegomenon to future work in critical dementia studies and critical disability studies -- Chapter 5 Combating old ideas and building identity: Sexual identity development in people with disabilities -- Chapter 6 Sexuality and disability in Brazil: Contributions to the promotion of agency and social justice -- Part II Subjugated histories and negotiating traditional discourses -- Chapter 7 Sexuality, disability and madness in California's eugenics era -- Chapter 8 Disability rights through reproductive justice: Eugenic legacies in the abortion wars -- Chapter 9 Sexuality and the disregard of lived reality: The sexual abuse of children and young people with disabilities -- Chapter 10 Sexuality and physical disability: Perspectives and practice within Orthodox Judaism -- Part III Politics, policies and legal frames across the world -- Chapter 11 Sexual citizenship, disability policy and facilitated sex in Sweden -- Chapter 12 Sexual health and disability in Zimbabwe -- Chapter 13 "Tick the straight box": Lesbian, gay, bisexual and transgender (LGBT+) people with intellectual disabilities in the UK.

AbstractThe study investigates story-telling in naturally-occurring interactions in a care home for older people with dementia in England. Stories were told by a range of discourse participants and varied from more relationally-oriented anecdotes occurring as part of small talk to more transactionally-oriented narratives embedded into work routines. The main aim of the study was to explore narratives as social practice in the interactions of the care staff and to discover what functions they perform in their workplace practice and more generally in that of the care home. The analysis focused principally on two primarily work-oriented narrative types: "working stories" and "narratives of professional practice". The findings were that such stories performed a range of key functions in the professional practice of the care givers, in particular problem-solving, knowledge-sharing and critical evaluation.

AbstractEnergized by seminal scholarship within narrative studies; communication studies of aging and dementia; and formulaic language, we examined a wide range of stories told multiple times within two different longitudinal collections of verbal interactions involving two women in their 80s (one US American; one French). Based on multifaceted analyses of these longitudinal series of stories, we identified a new type of narrative, the "narrative crystal". We characterize the internal formal architecture of two illustrative crystals (one from each corpus) before illuminating how such crystals function for their speakers as reassuring interactional "stepping stones" within their larger discourse surroundings. Our findings sketch a possible developmental process regarding how meaningful personal experiences come to be transformed over the lifespan: from the inchoate qualities of first-time tellings shaped by the interaction, through incrementally increased stability over the course of many tellings, to reach the highly durable nature of narrative crystals.

The emergence, social differentiation, and reproduction of human communities require socialization of the young. Socialization practices require caregivers and socially distributed, intuitive, normative knowledge systems to enable progeny to acquire and sustain habitual, socially organized skills and belief systems. Neurobiological, cognitive, emotional, and socio-cultural evolution enabled and paralleled the acquisition of communicative and socio-cultural skills indispensable for the emergence and reproduction of a sense of others. Stable adult capacities differentially weaken over the life cycle. This 'reverse socialization' means gradual loss of self, sense of others, and decline of routine practices necessary for reproduction of communal life. A modest corpus of data (10 minutes of discourse between six couples, two deemed 'normal', and four where one spouse diagnosed with Alzheimer's Disease or Frontotemporal Dementia) is used to illustrate caregiver scaffolding simulation of appropriate socio-cultural interaction, illuminating the origin and demise of socio-cultural presentations of self from birth to death.

"Cover" -- "Half Title" -- "Title Page" -- "Copyright Page" -- "Table of Contents" -- "List of Contributors" -- "Preface" -- "Acknowledgements" -- "Introduction: Towards Transdisciplinary Studies on Ageing in Africa" -- "Part I: Narratives and the Construction of Elderliness" -- "1 Towards a Cultural and Linguistic Construction of Late-life Dementia in an Urban African Population" -- "2 Identity Management and Old Age Construction among Xhosa-speakers in Urban South Africa: Complaint Discourse Revisited" -- "3 Imprints of History and Economy across the Life Course of an Elderly Namaqualander 1920-1996" -- "Part II: Cross-Cultural Perspectives on Ageing and Seniority" -- "4 From Shrub to Log: The Ancestral Dimension of Elderhood among Sukuma in Tanzania" -- "5 Coming of Age and Authority: Milk as a Source of Power in Himbaland, Northem Namibia" -- "6 Social Categories and Seniority in a House-based Society" -- "Part III: Crises and Strategies of Elderhood" -- "7 Holding Up the Sky: Gender, Age and Work among the Abaluyia of Kenya" -- "8 Rhetoric of Remembrance: Privileged Authority of Elders and the Contested Gradations of Seniority" -- "9 'They Don't Listen': Contemporary Respect Relations between Zulu Grandmothers and Grandchildren" -- "10 The Toilet: Dignity, Privacy and Care of Elderly People in Kwahu, Ghana" -- "11 'They Talk to Us Like Children': Language and Intergenerational Discourse in First-time Encounters in an African Township" -- "12 Skeletons of the Past, Flesh and Blood of the Present: Remembrance and Older People in a South African Context" -- "Epilogue: African Gerontology: Critical Models, Future Directions" -- "Dedication

Intro -- Narrative social work -- Contents -- Acknowledgements -- About the authors -- Part I: Narrative -- Introduction -- 1. Introduction to narrative theory -- Seven features of narrative -- Three approaches to narrative -- Further reflections -- Part II: Narrative and social work -- 2. Narrative, human rights and social justice -- Narrative and human rights -- Narrative and social justice -- Further reflections -- 3. The narrative Self and social work -- Essentialist Self -- Dialogical Self -- Rhizomatic Self -- Self and self-reflection -- Further reflections -- 4. Social work ethics and narrative -- Levinas, the Self and the Other -- Narrative ethics -- Further reflections -- 5. Narrative and social policy -- Definition -- Narrative policy analysis -- A narrative analysis of the National Dementia Strategy -- Further reflections -- Part 3: Application -- 6. Plot, characterisation and rhetoric in child protection -- Background -- Emplotment -- Trajectory -- Characterisation -- Rhetoric -- Further reflections -- 7. The narrative Self in mental health discourse -- Meta-narrative of the Self -- Narrative and the Self -- Social work, narrative and mental health -- Further reflections -- 8. Meta-narratives of disability -- Religious meta-narrative -- Medical meta-narrative -- Social meta-narrative -- A rhizomatic approach to disability -- Further reflections -- Conclusion -- References -- Index.

This article discusses the two major groups of Alzheimer medications, which are hotly debated in the specialized literature because of their doubtful efficacy. Examining this issue under the rubric of an `anthropology of uncertainty,' this article seeks to address the question: how do doctors prescribe medications given tensions created by uncertainty? A partial answer is drawn from research conducted in Brazil with local psychogeriatricians, which has documented a high degree of certainty regarding Alzheimer drugs and their benefits. I argue that one reason for this certainty is that `efficacy' has become increasingly non-specific in Alzheimer's disease through the broadening of outcome measures in clinical trials. While such measures previously focused on cognitive symptoms, they now encompass concepts such as functionality, quality of life and activities of daily living. The certainty of the Brazilian psychogeriatricians is further buttressed by three interacting elements: (i) the influence of the pharmaceutical industry; (ii) long-standing arguments for including non-cognitive symptoms in dementia care and research; and (iii) a specific discourse found in geriatrics and gerontology, which recognizes `the person beyond cognition.'

El presente artículo desarrolla una sistematización y análisis sobre una intervención desarrollada en mi actividad profesional como trabajador social en un Centro de Recuperación estatal. Surge de las tensiones en el abordaje con una persona con diagnóstico de demencia y la inquietud por generar narrativas que posibiliten prácticas y discursos despatologizantes.El marco teórico consta de cuatro ejes, donde destacan: discursos/prácticas en claves de poder-saber, la herencia positivista y su reproducción acrítica; la categoría de enfermedad mental como construcción teórica; los aportes del análisis institucional; y la denuncia de lo natural desde la semiología.La metodología consiste en el enfoque biográfico-narrativo, entendiendo la identidad narrativa como permanente (re)significación en relación con los espacios transitados, generando la apertura a nuevos discursos y universos de sentido, a nuevas realidades.La reflexión se centra en la necesidad de generar discursos/prácticas por fuera de las hegemónicas biologicistas, conscientes de las lógicas de poder que las atraviesan, construyendo lugares más empáticos con el sufrimiento humano. AbstractThis article develops a systematization and analysis of an intervention made in my professional activity as a social worker in a state Recovery Center. It comes from the tensions in the approach of a person diagnosed with dementia and the need to create narratives that enable de-pathologizing practices and discourses.The theoretical framework consists of four main ideas, including: discourses/practices in the form of power-knowledge, the positivist heritage and its uncritical reproduction; the category of mental illness as a theoretical construction; the contributions of institutional analysis; and the criticism of what is natural from semiotics.The methodology consists of a biographical-narrative approach, understanding the narrative identity as a constant (re)signification in relation to the inhabited spaces, welcoming new discourses and universes of meaning, new realities.The reflection is focused on the need to create discourses/practices outside the hegemonic biologistic ones, being aware of the logics of power that go through them, building places which are more empathetic with human suffering.

1. Metaphor, Transformation and Transdisciplinarity Colin Sage, Ian Hughes, Edmond Byrne, Ger MullallyPart 1: Metaphors of Reason2. Metaphors of Technological Change Fionn Rogan3. Nitrogen, Planetary Boundaries, and the Metabolic Rift: Using Metaphor for Dietary Transitions Toward a Safe Operating Space Colin Sage4. Alchemical and Cyborgian Imaginings in Technoscientific Discourse on Holistic Turns in Food Processing and Personalised Nutrition Shane V. Crowley5. Carbon Budgets: A Metaphor to Bridge the Science -- Policy Interface on Climate Change Action James GlynnPart 2: Myths and Metaphors of Unreason6. Why the Metaphor of Complementary Dualism, and Metaphor Itself, are Foundational to Achieving Sustainability Edmond Byrne7. Myth Beyond Metaphor: Myths in Transition Evan James Boyle8. The Hare and the Tortoise; Metaphorical Lessons Around Sustainability Connor McGookin, Brian Ó Gallachóir and Edmond ByrnePart 3: Metaphor, Myth and Mind9. Myth, Metaphor and Parable in the Psychoanalytic Concept of Development Ian Hughes10. The Elusive Target: Towards an Understanding of the Metaphors About Dementia and Sustainability Cormac Sheehan11. The Shamanic Dream as a Metaphor of Transformative Change Lidia GuzyPart 4: Metaphors of Creativity and Practice12. Joyce's Arches / Arcs / Arks: Portals as Metaphors of Transition from the Antediluvian Anthropocene Kieran Keohane13. Patterns of Interference: The Ethics of Diffraction in Mike McCormack's Solar Bones Maureen O'Connor14. The Rain Box: Raining on the Radio and Other Stories Jools Gilson

The Shadow Side of Fieldwork : Exploring the Blurred Borders between Ethnography and Life -- Contents -- List of Contributors -- Foreword: In the Shadows: Anthropological Encounters with Modernity -- Acknowledgments -- "Learn to Value Your Shadow!" An Introduction to the Margins of Fieldwork -- Part I Secrecy and Silence in the Ethnographic Encounter -- 1 Out of the Shadows of History and Memory: Personal Family Narratives as Intimate Ethnography -- 2 When Things Get Personal: Secrecy, Intimacy, and the Production of Experience in Fieldwork -- Part II Transmutations of Experience: Approaching the Reality of Shadows -- 3 The Scene: Shadowing the Real -- 4 Transmutation of Sensibilities: Empathy, Intuition, Revelation -- Part III Epistemic Shadows -- 5 Shining a Light into the Shadow of Death: Terminal Care Discourse and Practice in the Late 20th Century -- 6 The Hidden Side of the Moon, or, "Lifting Out" in Ethnographies -- Part IV The Politics of Ethnographic Encounter: Negotiating Power in the Shadow -- 7 The Gray Zone: Small Wars, Peacetime Crimes, and Invisible Genocides -- 8 Others within Us: Collective Identity, Positioning, and Displacement -- 9 Falling into Fieldwork: Lessons from a Desperate Search for Survival -- Part V Blurred Borders in the Ethnographic Encounter of Self and Other -- 10 Field Research on the Run: One More for the Road -- 11 Personal Travels through Otherness -- 12 When the Borders of Research and Personal Life Become Blurred: Thorny Issues in Conducting Dementia Research -- Index.

AbstractThis paper offers the Eastern Mediterranean Region (EMR) viewpoint with Qatar as a case for lasting transformation of health systems. The Qatar case study illustrates the importance of research in the development of health policy. It provides description of a series of projects that have been undertaken in relevant national areas such as autism, dementia, genomics, palliative care and patient safety. The paper discourse draws attention to investment requirement in health research systems to respond to country national health priorities and to strengthen public health policies for improving health and social outcomes by narrowing the gap between research and politics. In short, the discussion highlights the following: i) health is a human right marching towards universal health care, with research underpinning every advance in health care and quality medical services; ii) evidence-based research is emerging as a critical tool to aid policy- and decision-makers; iii) investment necessity in healthcare research/systems to enable responding to a country's national health priorities and to strengthen public health policies; and iv) need for multi-sectoral involvement of stakeholders to bridge the gap between research and politics. Finally, atypical stakeholders' engagement and bond to politics is a prerequisite to achieve healthcare objectives and policy success so as to reap the benefits of public health results.

This paper offers the Eastern Mediterranean Region (EMR) viewpoint with Qatar as a case for lasting transformation of health systems. The Qatar case study illustrates the importance of research in the development of health policy. It provides description of a series of projects that have been undertaken in relevant national areas such as autism, dementia, genomics, palliative care and patient safety. The paper discourse draws attention to investment requirement in health research systems to respond to country national health priorities and to strengthen public health policies for improving health and social outcomes by narrowing the gap between research and politics. In short, the discussion highlights the following: i) health is a human right marching towards universal health care, with research underpinning every advance in health care and quality medical services; ii) evidence-based research is emerging as a critical tool to aid policy- and decision-makers; iii) investment necessity in healthcare research/systems to enable responding to a country's national health priorities and to strengthen public health policies; and iv) need for multi-sectoral involvement of stakeholders to bridge the gap between research and politics. Finally, atypical stakeholders' engagement and bond to politics is a prerequisite to achieve healthcare objectives and policy success so as to reap the benefits of public health results.

This paper offers the Eastern Mediterranean Region (EMR) viewpoint with Qatar as a case for lasting transformation of health systems. The Qatar case study illustrates the importance of research in the development of health policy. It provides description of a series of projects that have been undertaken in relevant national areas such as autism, dementia, genomics, palliative care and patient safety. The paper discourse draws attention to investment requirement in health research systems to respond to country national health priorities and to strengthen public health policies for improving health and social outcomes by narrowing the gap between research and politics. In short, the discussion highlights the following: i) health is a human right marching towards universal health care, with research underpinning every advance in health care and quality medical services; ii) evidence-based research is emerging as a critical tool to aid policy- and decision-makers; iii) investment necessity in healthcare research/systems to enable responding to a country's national health priorities and to strengthen public health policies; and iv) need for multi-sectoral involvement of stakeholders to bridge the gap between research and politics. Finally, atypical stakeholders' engagement and bond to politics is a prerequisite to achieve healthcare objectives and policy success so as to reap the benefits of public health results.

PurposeOld age, in its most intense and extreme aspects involving frailty, dementia, Alzheimer's and death, is more often ignored rather than discussed in contemporary anthropology, remaining largely inaudible and invisible. This paper explores the marginal position of the study of old age in contemporary anthropology against the backdrop of the prominence of the post‐colonial agenda. The purpose of this paper is to discuss the comparison between the neglected Third Age and the abundantly discussed Third World in the context of the anthropological discourse on others.Design/methodology/approachThis is a theoretical paper on ageing.FindingsThis paper explores the marginal position of the study of old age in contemporary anthropology against the backdrop of the prominence of the post‐colonial agenda. The comparison between the neglected Third Age and the abundantly discussed Third World is discussed in the context of the anthropological discourse on others. Studying the old‐as‐other reveals two types of alterity: that which is culturally constructed as different vs that which is essentially different. The others that dominate the agenda of contemporary anthropology are culturally constructed, while the old‐as‐other is an ontological essence. The condition of being old, it is argued, is essentially beyond culture, constituting an extra‐cultural materiality. As such, the old‐as‐other does not answer to the anthropological dictum of representing the "natives' point of view" and cannot fit the contemporary hermeneutics of anthropological relativism. Contemporary anthropology, which resists essential objects such as the savage and the old, thus ignores the raw materiality of old age while producing ethnographically‐informed commentaries on eldercare.Originality/valueThe paper is original in highlighting the juxtaposition between the savage and old age that is used to facilitate an understanding of the contemporary discipline of anthropology as a regime of social constructionism, which fails to confront and represent the bare materiality of old age.

Cover -- Title -- Copyright -- Contents -- List of figures and tables -- Notes on contributors -- Introduction -- PART 1 Conceptions of ageing and old age -- 1 "A season to everything"? Considering life-course perspectives in bioethical and public-health discussions on ageing -- 2 Becoming oneself: toward a new philosophy of ageing -- 3 Third age and fourth age in ageing societies - divergent social and ethical discourses -- 4 The nature of the fourth age as a challenge to ageing societies -- PART 2 Perspectives and problems of old age in the context of medicine and healthcare -- 5 Old age, potentials, and vulnerability -- 6 Competence and cognitive deterioration: are we paying enough attention to ethical issues? -- 7 Opt in or opt out? Rethinking the provision of life-sustaining medical technology to the 'old old' -- 8 Not growing old - gracefully -- 9 How to think about age-group justice: the capabilities approach -- PART 3 Individual provisions and public policies in ageing societies -- 10 Final decisions for the final crisis: hopes and hypes regarding the advance directive in Germany -- 11 Preparing existential decisions in later life: advance healthcare planning -- 12 Articulating the case for the Longevity Dividend -- 13 Paradoxes of planning later life: anti-ageing practices and the lived body -- 14 The visionary shaping of dementia research: imaginations and scenarios in biopolitical narratives and ethical reflections -- 15 Solidarity and family care for an ageing population -- 16 Legacies, generations, and ageing futures: the ethics of intergenerativity -- Index