Establishing the framework : integration of psychosocial and hospice palliative care perspective : social work and counseling competencies in hospice palliative care -- Beginning the journey : early diagnosis and treatment perspective : psychosocial assessment -- The path not chosen : recurrence and chronic illness perspective: cultural competency -- Entering the unknown : the shift toward hospice palliative care perspective : intimacy and sexuality -- The long and winding road : illness predominates perspective : dying children and youth -- Watching and waiting : as death approaches perspective : suffering and despair -- The parting of the ways : time of death perspective : support for the hospice palliative care team -- Walking the edges : when a death occurs perspective: working with thoughts and emotions -- Entering the depths : adjusting to loss perspective: grief : it's complicated -- Reconnecting with the world : mending the heart
Self-awareness and communication -- Sex, gender, sexual orientation, behavior, and health -- Understanding attitudes and access to care -- The history and physical examination -- Shared decision making and family dynamics -- Care planning and coordination -- Ethical and legal issues -- Patient and family education and advocacy -- Psychosocial and spiritual issues -- Ensuring institutional inclusiveness
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Cover -- Title Page -- Copyright Page -- Contents -- Foreword -- About the Authors -- Acknowledgements -- Part 1 Getting Started -- Unit 1.1 Gaining Perspectives -- Part 2 Understanding the Caregiver's Self -- Unit 2.1 Reflecting on Death -- Unit 2.2 Mindfulness -- Unit 2.3 Self-Knowledge -- Unit 2.4 Spiritual Knowledge -- Unit 2.5 The Whole Self: Body-Mind-Spirit -- Unit 2.6 Facing Death -- Part 3 Understanding Ourselves in Service of the Dying Person -- Unit 3.1 Social and Cultural Influences -- Unit 3.2 Spiritual and Religious Influences -- Unit 3.3 The Nature of Loss and Suffering -- Part 4 Ways of Helping the Dying Person -- Unit 4.1 Fundamentals of Communication -- Unit 4.2 Compassionate Presence, Mindful Listening, and Effective Responding -- Unit 4.3 Fears and Assumptions about Death -- Unit 4.4 Narratives of Suffering -- Unit 4.5 Expressive Activities That Aid in Relieving Suffering -- Part 5 Honoring the Caregiver -- Unit 5.1 Nurture and Honor Yourself!
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This practicum report is a summary and reflection upon a Master of Social Work practicum completed at Victoria Hospice, supporting my desire to understand the role of a social worker within an interdisciplinary hospice palliative healthcare team. Several aspects of my practicum experience are explored through a literature review, embracing a biopsychosocial-spiritual model of practice. Included is a brief examination of Medical Assistance in Dying (MAiD) and its legislation in Canada. The knowledge gained from this practicum will guide my hospice palliative social work practice in northern BC, which in turn will provide a learning environment for future social work students wanting to specialize in this area of practice. ; Palliative Care
This practicum report is a summary and reflection upon a Master of Social Work practicum completed at Victoria Hospice, supporting my desire to understand the role of a social worker within an interdisciplinary hospice palliative healthcare team. Several aspects of my practicum experience are explored through a literature review, embracing a biopsychosocial-spiritual model of practice. Included is a brief examination of Medical Assistance in Dying (MAiD) and its legislation in Canada. The knowledge gained from this practicum will guide my hospice palliative social work practice in northern BC, which in turn will provide a learning environment for future social work students wanting to specialize in this area of practice. ; Palliative Care
This article examines the intersection between masculinity, military culture, and hospice and palliative care (HPC). The authors conducted a narrative literature review, supplemented with clinical annotations, to identify the impact of masculinity and military culture on the following topics salient to end-of-life care with older male veterans: pain management, mental health, coping, communication, autonomy and respect, and family roles. Findings suggest that traits associated with masculinity and military culture have an influence on the end-of-life process and HPC for older male veterans. Specifically, results suggest that older male veterans may deny or minimize physical pain, decline mental health treatment, utilize maladaptive coping strategies, avoid emotional conversations, struggle to manage perceived shifts in autonomy, and experience challenges negotiating changing family roles. The authors provide clinical recommendations for providers across various disciplines to address the aforementioned concerns with older male veterans in HPC. Overall, information presented in this article may be an important contribution to the literature for building cultural competencies with older male veterans and has the potential to improve the delivery of HPC for veterans and their families.
In recent years, hospice and palliative care (HPC) has grown, developed, and changed in response to the humanistic and social needs for supporting those with incurable illnesses. As a relatively new discipline, research is needed in HPC, and the priority setting of research is essential to help direct finite resources to support research. To promote creative research in different fields including HPC, the Taiwan government subsidized institutions to conduct research. In this study, we obtained data from the Government Research Bulletin, an open-source online system containing complete information about government subsidized studies since 1993 to investigate the development of research priority in HPC in Taiwan. In total, 552 studies were recorded during 1993–2021, with a continued upward trend. An association was found between research priority and the promulgation of new HPC regulations. The type of diseases in research extended from cancer to all advanced chronic conditions. The increased diversity in out-of-hospital settings of palliative research was also observed. Numerous studies have focused on education, and the theme gradually shifted from "training and education for healthcare professionals" to "public education". Here, the results may serve as a basis to understand the commonalities of research and enhance dialog in HPC research.
Die (allgemeine) Palliative Care befindet sich in einem tiefgreifenden hospizlich-palliativen Transformationsprozess der Mitarbeitende, Leitungspersonen und Trägerschaften sowie die Gesellschaft und die Politik zugleich erfasst. Dabei ist von der "konzeptionellen Verschiebung" der Palliative Care die Rede. Eine Schlüsselposition für das Gelingen der Entwicklung von Palliative Care-Prozessen nehmen die Leitungen der Einrichtungen ein. Sie müssen sich konzeptionell zu Fragen und Ansprüchen der letzten Lebensphase verhalten und Projekte und Initiativen zur Integration von Palliative Care unterstützen, wenn diese gelingen sollen.In der vorliegenden Masterthesis wurden erstmalig Einstellungen und Erfahrungen von Pflegefachpersonen zu Palliative Care mittels Fragebogen erkundet, die in Institutionen der Langzeitpflege arbeiten, die mit dem Label "Qualität in Palliative Care" ausgezeichnet sind. Dazu wurde eine Online-Befragung durchgeführt, die sich an alle Pfle- gepersonen von fünf Pflegeheimen richtete. Dabei wurden grundlegende Einstellungen und Erfahrungen der Mitarbeitenden entlang der sechs Kernleistungen der Pallia- tive Care erfragt. Die Ergebnisse zeigen beispielsweise, dass die Bedeutung von Palliative Care im beruflichen Alltag sehr hoch ist und die zukünftige Bedeutung der Palliative Care im beruflichen Kontext steigen wird. Für beinahe alle Mitarbeitenden ist Palliative Care persönlich wichtig und gibt ihrer Tätigkeit mehr Sinn. Palliative Care wirkt sich eindeutig positiv auf die Betriebskultur und die Arbeitszufriedenheit aus. Die Ergebnisse stellen managementrelevante Erkenntnisse dar, die wertvoll für die Nachhaltigkeit sowie die weitere Organisationsentwicklung von bereits zertifizierten Institutionen sein können. Zudem kann es für Institutionen, die sich im Bereich Palliative Care weiterentwickeln möchten, eine wertvolle Orientierungs- und Entscheidungshilfe sein. ; The (general) palliative care is currently in a profound hospice- and palliative-based process of transformation, that catches staff, management, organisations and politics at the same time. This is the so called conceptual transition in palliative care.A key position for the success of the development of palliative care processes takes the management. They have to behave concept-based to questions and demands in end of life. They also have to support projects and initiatives for the integration of palliative care. Especially when they should succeed.This research investigates experiences and attitudes of caregivers towards palliative care in nursing homes with the Swiss Label "Quality in Palliative Care". To reach the goal, an online-survey for caregivers in five nursing homes was realised. The findings show that the meaning of palliative care in the daily work is highly important and will increase in future. For the caregivers palliative care is very important and it gives their function and engagement more sense. Palliative care has a positive impact on the culture of the nursing home and the job satisfaction as well. The results are important for the management. The findings can be very important for the further sustainability and or- ganisational development of certified nursing homes. Furthermore it could be of high interest for nursing homes who are interested in developing along palliative care. ; Mag. Michael Rogner ; Zusammenfassungen in Deutsch und Englisch ; Abweichender Titel laut Übersetzung des Verfassers/der Verfasserin ; Karl-Franzens-Universität Graz, Masterarbeit, 2019 ; (VLID)4480478
The care of patients with advanced and terminal illness can be extremely rewarding but often causes professionals a considerable amount of discomfort. This is especially so when you feel under confident in your abilities to provide a high quality of symptom management and relief from distress and to communicate appropriately with patients. Patients with advanced disease present some of the most challenging ethical, physical, psychological and social issues toclinicians and indeed to society.Patients need us to be knowledgeable, skilful and understanding. The fully revised and updated new editi
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