Suchergebnisse

A roadmap to behavioral intervention research in hospice and palliative care -- The foundations of behavioral intervention research in hospice and palliative care -- Defining and analyzing the problem -- Designing an intervention -- Planning, pilot-testing, and refining the intervention -- Conducting a clinical trial -- Disseminating findings and translating the intervention.

Religious Understandings of a Good Death in Hospice Palliative Care -- Religious Understandings of a Good Death in Hospice Palliative Care -- Contents -- Acknowledgments -- Introduction -- Part I: Religious Understandings of a Good Death -- Chapter 1: Cicely Saunders and the Development of Hospice Palliative Care -- Chapter 2: "Like a Ripe Fruit Separating Effortlessly from Its Vine" Religious Understandings of a Good Death: Hinduism -- Chapter 3: Welcoming an Old Friend: Buddhist Perspectives on Good Death -- Chapter 4: Muslim Perspectives on a Good Death in Hospice and End‑of‑Life Care -- Chapter 5: Tradition and Change in Jewish Ideals Regarding a "Good" Death -- Chapter 6: Dying Well in Christianity -- Chapter 7: Chinese Religions and Hospice Care -- Part II: Case Studies -- Chapter 8: Buddhist Hospice Care in Thailand -- Chapter 9: The Ugandan Way of Living and Dying -- Chapter 10: Punjabi Extended Family Hospice Care -- Chapter 11: Seeking Physical, Cultural, Ethical, and Spiritual "Safe Space" for a Good Death: The Experience of Indigenous Peoples in Accessing Hospice Care -- Chapter 12: Caring for Children in Hospice and Palliative Care: The Spiritual/Religious Dimension -- Chapter 13: Interfaith Chaplaincy in Hospice Palliative Care -- Conclusion -- Glossary of Terms and Abbreviations -- Contributors -- Index.

Karen Murphy and Bob Whorton, eds, Chaplaincy in Hospice and Palliative Care. London: Jessica Kingsley Publishers, 2017, 206 pp. (Pbk). ISBN: 978-1-78592-068-4, £18.99.

BACKGROUND: After over 4 years since medical assistance in dying legalization in Canada, there is still much uncertainty about how this ruling has affected Canadian society. OBJECTIVE: To describe the positive aspects of medical assistance in dying legalization from the perspectives of hospice palliative care providers engaging in medical assistance in dying. DESIGN: In this qualitative descriptive study, we conducted an inductive thematic analysis of semi-structured interviews with hospice palliative care providers. PARTICIPANTS AND SETTING: Multi-disciplinary hospice palliative care providers in acute, community, residential, and hospice care in Vancouver and Toronto, Canada, who have engaged in end-of-life care planning with patients who have inquired about and/or requested medical assistance in dying. ETHICAL CONSIDERATIONS: The research proposal was approved by University of British Columbia Research Ethics Board in Vancouver and University Health Network in Toronto. Participants were informed regarding the research goals, signed a written consent, and were assigned pseudonyms. RESULTS: The 48 participants included hospice palliative care physicians (n = 22), nurses (n = 15), social workers (n = 7), and allied health providers (n = 4). The average interview length was 50 min. Positive aspects of medical assistance in dying legalization were identified at (1) the individual level: (a) a new end-of-life option, (b) patients' last chance to express control over their lives, (c) patient and family comfort and relief, and (d) a unique learning experience for hospice palliative care providers; (2) the team level: (a) supportive collegial relationships, (b) broadened discussions about end-of-life and palliative care, and (c) team debriefs provide opportunities for education and support; and (3) the institutional level: (a) improved processes to facilitate the implementation logistics. CONCLUSION: While being involved in the medical assistance in dying process is complex and challenging, this study sheds light on ...

Conflict, poverty, endemic diseases, and lack of clean water pose serious challenges for the population in Africa. This book focuses on palliative care and hospice development, examining the development of palliative care services in 26 African countries where initiatives have been identified.

The term "palliative care" has a negative connotation and may act as a barrier to early patient referrals. Rebranding has thus been proposed as a strategy to reduce the negative perceptions associated with palliative care. For example, using the term "supportive care" instead of "palliative care" in naming palliative care units has been proposed in several studies. In Taiwan, terms other than "palliative" and "hospice" are already widely used in the names of palliative care units. With this in mind, this study investigated the characteristics of palliative care unit names in order to better understand the role of naming in palliative care. Relevant data were collected from the Taiwan Academy of Hospice Palliative Medicine, the National Health Insurance Administration of the Ministry of Health and Welfare, and the open database maintained by the government of Taiwan. We found a clear phenomenon of avoiding use of the terms "palliative" and "hospice" in the naming of palliative care units, a phenomenon that reflects the stigma attached to the terms "palliative" and "hospice" in Taiwan. At the time of the study (September, 2016), there were 55 palliative care units in Taiwan. Only 20.0% (n = 11) of the palliative care unit names included the term "palliative," while 25.2% (n = 14) included the term "hospice." Religiously affiliated hospitals were less likely to use the terms "palliative" and "hospice" (χ2 = 11.461, P = .001). There was also a lower prevalence of use of the terms "palliative" and "hospice" for naming palliative care units in private hospitals than in public hospitals (χ2 = 4.61, P = .032). This finding highlights the strong stigma attached to the terms "palliative" and "hospice" in Taiwan. It is hypothesized that sociocultural and religious factors may partially account for this phenomenon.

'Spiritual Care in NHSScotland' emphasises spiritual care as broader than religious care, and makes clear the importance of well resourced spiritual and religious care within healthcare. In response, chaplaincy must become more accountable and professional. There are implications for ongoing training and registration of chaplains, and this may well create difficulties for part time and volunteer chaplains, as well as for church authorities. However, the Guidelines are to be welcomed as a means to improving practice in healthcare settings.

Establishing the framework : integration of psychosocial and hospice palliative care perspective : social work and counseling competencies in hospice palliative care -- Beginning the journey : early diagnosis and treatment perspective : psychosocial assessment -- The path not chosen : recurrence and chronic illness perspective: cultural competency -- Entering the unknown : the shift toward hospice palliative care perspective : intimacy and sexuality -- The long and winding road : illness predominates perspective : dying children and youth -- Watching and waiting : as death approaches perspective : suffering and despair -- The parting of the ways : time of death perspective : support for the hospice palliative care team -- Walking the edges : when a death occurs perspective: working with thoughts and emotions -- Entering the depths : adjusting to loss perspective: grief : it's complicated -- Reconnecting with the world : mending the heart