Barriers to cultural participation by people with disabilities in Europe: a study across 28 countries
In: Disability & society, Band 39, Heft 10, S. 2465-2487
ISSN: 1360-0508
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In: Disability & society, Band 39, Heft 10, S. 2465-2487
ISSN: 1360-0508
In: Disabilities, Band 3, Heft 2, S. 147-164
ISSN: 2673-7272
Less than 7% of published works are accessible. To overcome this book famine, the Marrakesh Treaty was enacted with the view of enhancing access to published works for people with visual impairments, blind people, and people that are otherwise print-disabled. Leveraging survey data from six European countries (Italy, Ireland, Sweden, Germany, Hungary, and the Netherlands), we investigate the respondents' knowledge of the Marrakesh Treaty and whether they experienced improved access to printed material after its implementation. The results of the survey show that people who are blind and use braille printers are more likely to report an improvement in accessing printed material, suggesting that the exceptions provided for in the Marrakesh Treaty best support the reproduction and availability of copyrighted works in braille rather than other formats.
In: In D. Ferri, F. Palermo, G. Martinico, Federalism and the Rights of Persons with Disabilities. Oxford : Hart Publishing (2023) https://www.bloomsbury.com/uk/federalism-and-the-rights-of-persons-with-disabilities-97815099624
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In: Legal issues of economic integration: law journal of the Europa Instituut and the Amsterdam Center for International Law, Universiteit van Amsterdam, Band 49, Heft 3, S. 269-292
ISSN: 1566-6573, 1875-6433
The Marrakesh Treaty to Facilitate Access to Published Works for Persons Who Are Blind, Visually Impaired, or Otherwise Print Disabled (Marrakesh Treaty) aims to enable the creation and cross-border exchange of copyrighted works in formats that are accessible to individuals with disabilities. To that end, it requires Contracting Parties to introduce a set of limitations and exceptions to existing copyright rules. Following Opinion 3/15 of the Court of Justice, the Marrakesh Treaty was concluded by the European Union (EU) on behalf of its Member States. It was implemented by means of a Directive governing the substantive rights of reproduction, distribution and making available of published works in accessible formats, and a Regulation governing the cross-border exchange of accessible format works with Third Countries, both based on Article 114 of the Treaty on the Functioning of the European Union (TFEU). This article examines the role of the Marrakesh Directive and Regulation in enhancing access to printed material to persons with disabilities. In that connection, it discusses common trends and perceptions of such a Marrakesh framework on the basis of empirical research consisting of a set of semi-structured interviews conducted with key stakeholders across twelve Member States. It locates the Directive and Regulation within the growing body of EU legislation that aims to ensure accessibility of an array of materials, products and services for persons with disabilities, while driving forward economic integration. In doing so, it conceives of the Marrakesh Directive and Regulation as part of the broader remit of EU disability law, which is an emerging cross-cutting area of EU action. On the whole, this article argues that the Marrakesh Treaty and its implementing legislation contribute to the protection of the rights of persons with disabilities within the internal market, but form just one piece – albeit an important one – of the accessibility 'jigsaw'.
Marrakesh Treaty, Directive 2017/1564/EU (Marrakesh Directive), Disability, Copyright exceptions, Accessibility, European Accessibility Act, European Union Law, Implementation, Empirical Research
In: International journal of cultural policy: CP, Band 29, Heft 4, S. 467-483
ISSN: 1477-2833
In: Scandinavian journal of disability research, Band 24, Heft 1, S. 68-81
ISSN: 1745-3011
In: D. Ferri and L. Urzel, 'The Employment Equality Directive and Access to Justice for Persons with Disabilities: Some Reflections in Light of Tartu Vangla and Komisia za Zashtita ot Diskriminatsia', European Yearbook on Human Rights 2022 (P. Czech, L. Heschl, K. Lukas, M. Nowak, G. Oberleitner Eds.)
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In: Ferri, D & Donnellan, K, 'The Implementation of the Marrakesh Treaty in the European Union: An Important Piece in the Accessibility Jigsaw?' (2022) 49 Legal Issues of Economic Integration, pp. 269-292
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In: D. Ferri and K. Donnellan (2022) 'The implementation of the Marrakesh Directive: a comparative analysis across six EU Member States'. European Intellectual Property Review, 44 (5):257-266
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Article 30 of the UN Convention on the rights of Persons with Disabilities obliges States Parties to ensure accessibility of cultural goods, services and heritage and to adopt measures enabling persons with disabilities to utilize their artistic potential. However, people with disabilities experience barriers to engagement in cultural life as audiences and as creators. This article presents a narrative literature review that classifies barriers and facilitators to cultural participation identified in previous studies. It does so under five headings: (1) lack of effective/adequate legislation, policies and legal standards; (2) lack of funding and/or of adequate services; (3) negative attitudes; (4) lack of accessibility; (5) lack of consultation with, and involvement of, persons with disabilities in cultural organisations. This provides a novel contribution to the state of art by synthesising findings from different yet related fields. It forms the basis for future multi-method research addressing barriers to participation in culture.
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In: European Public Law, Band 27, Heft 2021, S. Forthcoming
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In: Delia Ferri and Ann Leahy, 'The Right of People with Disabilities to Participate in Cultural Life: Is Cinderella Going to the Ball?', in Sally Robinson and Karen Fisher, Elgar Handbook on Disability Policy (Edward Elgar, Forthcoming)
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In: European journal of risk regulation: EJRR ; at the intersection of global law, science and policy, Band 11, Heft 4, S. 851-863
ISSN: 2190-8249
In 2014, the European Joint Procurement Agreement (JPA) was introduced as an innovative instrument to organise the procurement of vaccines and medications in preparation for pandemics. An overriding purpose of the JPA is to secure equitable and cost-effective access to medical supplies for participating EU Member States during serious health crises. This article aims to understand the current use of the JPA in response to the COVID-19 pandemic. Post-analysis of the recent use of the JPA, the article will discuss how the regional procurement mechanism can be strengthened to support the development of a European Health Union. In particular, the article will firstly question whether the four recent JPA procurement actions facilitated equitable access to medical supplies and services. Secondly, it will ask whether the centralised procurement actions preserved the integrity of the Internal Market. The importance and originality of this study are that it addresses an instrument, the JPA, which has been largely overlooked by legal scholars, and it explores how the provisions for the joint procurement of medical countermeasures as included in Article 5 of Decision 1082/2013/EU on serious cross-border threats to health could be extended to support the functioning of a European Health Union.
In: European Journal of Risk Regulation, pp.1-13 (2020)
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Working paper
In: D. Ferri and A. Broderick, 'The European Court of Human Rights and the "Human Rights model of Disability". Convergence, Fragmentation and Future Perspectives', in P. Czech, L. Heschl, K.Lukas, M. Nowak and G. Oberleitner (eds.) European Yearbook on Human Rights 2019 (Intersentia, 2019), 261
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