Privacy Issues in Biomedical and Clinical Research

Abstract

Front Matter -- Preface -- Contents -- Introduction: Privacy Issues in Research -- The Potential-and the Threat-of Genetic Information -- Can We-and Should We-Ensure Genetic Privacy? -- Handling Genetic Data in the Laboratory -- Institutional Safeguards -- What, If Anything, Should the Federal Government Do? -- APPENDIX A Program and Discussion Questions -- APPENDIX B Agenda -- APPENDIX C A Comment by Frederick R. Anderson -- APPENDIX D Participant Biographies.