Family-Centered Care in Childhood Disability: Theory, Research, Practice

Abstract

Intro -- Care for the Most Vulnerable: A Landscape of Opportunities -- Contents -- Part I: Theory -- 1: Sensory Processing and Meaning-Making in Early Development -- 1.1 Introduction -- 1.2 The Importance of Sensitive Periods -- 1.3 Sensory Disorders in Preterm Infants and Children with ASD -- 1.4 Atypical Sensory Integration Throughout Different Developmental Stages -- 1.5 Summary -- References -- 2: Collaborative Consultation with Families in the Context of Developmental Disability -- 2.1 Introduction -- 2.2 Mental Health Issues in Pregnancy, Infancy and Early Childhood -- 2.2.1 The Importance of Parental Well-Being and Self-Efficacy in Early Childhood Mental Health -- 2.2.2 Risk Factors in Pregnancy and Early Childhood -- 2.2.2.1 Difficulties During Pregnancy -- 2.2.2.2 Factors that Make the Birth and Delivery Period Difficult -- 2.2.2.3 Difficult Circumstances After Birth -- 2.2.3 Who Is the Child's Expert? -- 2.2.4 Communication Strategies Around the Family -- 2.2.5 Mental Health of Professional Staff in the Perinatal Period -- 2.3 The Collaborative Consultation -- 2.3.1 Key Concepts of Collaborative Consultation -- 2.3.2 Observing the Baby, Sharing Observations with Parents -- 2.3.3 Levels of Infant Monitoring and the Interaction Between Levels -- 2.3.4 Observation and Consultation with Parents -- 2.3.4.1 Assess Whether the Parent Is Ready for the Joint Observation Situation -- 2.3.4.2 Always Ask for Permission! -- 2.3.4.3 Listen and Keep Quiet More, Say Less! -- 2.3.4.4 Wonder Out Loud! -- 2.3.4.5 Ask Open Questions! -- 2.3.4.6 Formulate Your Thoughts -- 2.4 Possible Specific Areas of the Use of Collaborative Consultation -- 2.4.1 Premature Babies -- 2.4.2 Infants Exposed to Substance Abuse or Ones with Neurological Impairment and Developmental Differences.

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Family-Centered Care in Childhood Disability: Theory, Research, Practice

Borgatti, Renato; Grumi, Serena; Provenzi, Livio

Borgatti, Renato; Grumi, Serena; Provenzi, Livio

Abstract

The book presents a comprehensive and well-organized overview of the family-centered care approaches for child disability, and provides multi-professional contributions from the fields of psychiatry, psychology, and rehabilitation science. The volume is divided into three main sections, that highlights the theoretical basis, research evidence, and clinical implications of the family-centered approach to child care. Active engagement of parents in the therapeutic and rehabilitative journey of their children with disability is key to the success of early interventions and their long-term benefits. Research and clinical experiences in healthcare services around the world suggest that early supportive programs may promote children's development at its best, with both clinical benefits and economic advantages for the healthcare system. This volume will appeal to a wide readership, from clinicians and researchers in child disability and rehabilitation, to students and professionals in the fields of psychiatry, psychology, and rehabilitation science

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