Ethical Considerations for Discrete Choice Experiments with Caregivers

In: Journal of empirical research on human research ethics: JERHRE ; an international journal, Band 17, Heft 4, S. 426-430

Abstract

We discuss research ethics challenges experienced while running a discrete choice experiment administered to caregivers of children with treatment resistant pediatric epilepsy. We highlight ethical considerations around the study design of the discrete choice experimental paradigm that pertain to vulnerability of and caregiving burden on the population, imbalance of benefit-to-load of participation, and limitations of cultural meaningfulness and generalizability.